
تعداد نشریات | 45 |
تعداد شمارهها | 1,381 |
تعداد مقالات | 16,906 |
تعداد مشاهده مقاله | 54,422,152 |
تعداد دریافت فایل اصل مقاله | 17,098,563 |
Building Sustainability: Crip Time and Disability Justice in the Spanish Medical Industrial Complex | ||
مجله پژوهش های فلسفی | ||
مقاله 3، دوره 19، شماره 51، تیر 1404، صفحه 19-46 اصل مقاله (1.48 M) | ||
نوع مقاله: مقاله علمی- پژوهشی | ||
شناسه دیجیتال (DOI): 10.22034/jpiut.2025.67055.4087 | ||
نویسنده | ||
Àger Pérez Casanovas* | ||
Independent Scholar, Barcelona, Spain | ||
چکیده | ||
This paper examines the intersection of Crip Time and Disability Justice within the Spanish medical-industrial complex, uncovering the systemic barriers faced by disabled individuals, particularly those with chronic pain and fatigue. It argues for a paradigm shift toward more inclusive and sustainable healthcare temporalities that prioritize care, interdependence, and accessibility over efficiency and productivity. Building on the history of healthcare activism in Spain, with a focus on movements such as Marea Blanca, the paper integrates the principles of Disability Justice and Crip Theory to critique the rigid temporal structures imposed by medical institutions. These structures marginalize disabled individuals by enforcing normative timelines that fail to accommodate their lived experiences. The chapter highlights the necessity of rethinking healthcare systems to embrace temporalities that sustain well-being and challenge the austerity-driven logic of the Medical Industrial Complex. This paper analyzes Spanish healthcare settings and draws on previous experiments in Disability Justice activism for citizens living with chronic pain or chronic fatigue to envision a future of healthcare grounded in justice and sustainability. It advocates for flexible, patient-centered care models that respect and adapt to diverse temporalities. This approach proposes a shift in public healthcare policies toward long-term collective flourishing and equity. | ||
کلیدواژهها | ||
Critical Disability Studies؛ Crip Time؛ Marea Blanca؛ Chronic Fatigue؛ Chronic Pain | ||
مراجع | ||
Bambra, C. & Smith, K. E. (2010). No longer deserving? Sickness benefit reform and the politics of (ill) health. Critical Public Health, 20(1), 71-83. https://doi.org/10.1080/09581590902763265
Bellah, R. N. (1999). Max Weber and World Denying Love: A Look at the Historical Sociology of Religion. Journal of the American Academy of Religion, 67(2), 277 304.
Benet, W. L., & Segerberg, A. (2012). The Logic of Connective Action. Information, Communication & Society, 15(5), 739-768. http://dx.doi.org/10.1080/1369118X.2012.670661
Ben-Moshe, L., Chapman, C. & Carey, A. (eds.) (2014). Disability Incarcerated: Imprisonment and Disability in the United States and Canada. Palgrave Macmillan. http://dx.doi.org/10.1057/9781137388476
Berg, M. & Seeber, B. K. (2016). The Slow Professor: Challenging the Culture of Speed in the Academy. Toronto, ON, Canada: University of Toronto Press
Berne, P. (2015). 10 Principles of Disability Justice. Sins Invalid. https://www.sinsinvalid.org/blog/10-principles-of-disability-justice
Burton, M. (2016). The Politics of Austerity: A Recent History. London, UK: Palgrave Macmillan
Calzada, I. & del Pino, E. (2011). Are Spaniards different? European convergence and regional divergence in the evaluation of the welfare state. In A. M. Guillén & M. León (Eds.), The Spanish welfare state in European context (pp. 139-164). Ashgate.
Candón Mena, J. (2013). Toma la Calle, Toma las Redes: El movimiento 15M en Internet. Sevilla, Spain: Atrapasueños Editorial.
Clare, E. (2017). Brilliant Imperfection: Grappling with Cure. Durham, NC, USA: Duke University Press.
Cristancho, C., Anduiza, E., Congosto, M. & Majó-Vázquez, S. (2020). Contentious Responses to the Crises in Spain: Emphasis Frames and Public Support for Protest on Twitter and the Press. International Journal of Communication, 14, 3266-3288.
Dewey, J. (1939). “Creative Democracy: The Task Before Us.” In: The Later Works, 1925–1953, vol. 14. Southern Illinois University Press.
Dewey, J. (2015). Lectures in Social and Political Philosophy. EJPAP, 7(2). DOI: https://doi.org/10.4000/ejpap.404
Dick-Mosher, J. (2015). Bodies in Contempt: Gender, Class, and Disability Intersections in Workplace Discrimination Claims. Disability Studies Quarterly, 35(3), 1–15. https://doi.org/10.18061/dsq.v35i3.4928
Ellison, E. (2023). Time Foreclosure During Fascism: On Liberation, Care, and Accessibility. Abolish Time. https://abolishtime.medium.com/time-foreclosure-during-fascism-onliberation-care-and-accessibility-8c8f904a8f6
Evans, H. D. (2017). Un/covering: Making Disability Identity Legible. Disability Studies Quarterly, 37(1) https://doi.org/10.18061/dsq.v37i1.5556
Fraser, N. (2022). Cannibal Capitalism: How Our System Is Devouring Democracy, Care, and the Planet – and What We Can Do about It. Verso.
Friedman, C. (2019). Ableism, Racism, and Subminimum Wage in the United States. Disability Studies Quarterly, 39(4). https://doi.org/10.18061/dsq.v39i4.6604
Galer, D. (2012). Disabled Capitalists: Exploring the Intersections of Disability and Identity Formation in the World of Work. Disability Studies Quarterly, 32(3). https://doi.org/10.18061/dsq.v32i3.3277
Gamson, W. A. (1975). The strategy of social protest. Homewood, IL: Dorsey Press.
Garland-Thomson, R. (1997). Extraordinary bodies: figuring physical disability in American culture and literature. New York, NY: Columbia University Press.
Garland-Thomson, R. (2005). Feminist Disability Studies. Signs, 30(2), 1557-1587. https://doi.org/10.1086/423352
Germán, C. (2013). La transición enfermera. La Revolución de las batas blancas: La enfermería española de 1976 a 1978. Fundación Índex.
Grue, J. (2022). The Death of Others. On the Narrative Rhetoric of Neoliberal Thanatopolitics. Disability Studies Quarterly, 42(1). https://doi.org/10.18061/dsq.v42i1.7799
Hersey, T. (2022). Rest is Resistance: A Manifesto. Little Brown Spark.
Huerta Wong, J. E., & Gómez García, R. (2013). Concentración y diversidad de los medios de comunicación y las telecomunicaciones en México. Comunicación y Sociedad, 19, 113-152. https://doi.org/10.32870/cys.v0i19.206
Iglesias-Onofrio, M., Rodrigo-Cano, D. & Benítez-Eyzaguirre, L. (2018). Marea Verde y Marea Blanca: nuevas formas de comunicación y acción colectiva. IC - Revista Científica de Información y Comunicación, 15, 193-221. http://doi.org/10.12795/IC.2018.i01.07
Jain, S. L. (2007). Living in Prognosis: Toward an Elegiac Politics. Representations, 98: 77-92.
Jones, A. (2022). “I Can’t Really Work Any ‘Normal’ Job:” Disability, Sexual Ableism, and Sex Work. Disability Studies Quarterly, 42(2). https://doi.org/10.18061/dsq.v42i2.9094
Juris, J. S., Pereira, I., & Feixa, C. (2012). La globalización alternativa y los ‘novísimos’ movimientos sociales. Revista del Centro de Investigación. Universidad de La Salle, 10(37), 23-29.
Kafai, S. (2021). Crip Kinship: The Disability Justice & Art Activism of Sins Invalid. Arsenal Pulp Press.
Kafer, A. (2013). Feminist, Queer, Crip. Indiana University Press.
Kattari, S., Olzman, M. & Hanna, M. D. (2018). You Look Fine! Ableist Experiences by People with Invisible Disabilities. Affilia, 33(4), 455-492. https://doi.org/10.1177/0886109918778073
Kennedy, L. (2021). The ‘hassle’ of ‘good’ care in dementia: Negotiating relatedness in the navigation of bureaucratic systems of support. In L. Montesi & M. Calestani (Eds.) (2021). Managing Chronicity in Unequal States: Ethnographic perspectives on caring (pp. 91-111). UCL Press.
Kittay, E. F. (1999). Love’s Labor: Essays on Women, Equality, and Dependency. Routledge.
Kittay, E. F. (2021). Precarity, Precariousness, and Disability. In M. Hamington & M. Flower (Eds.) (2021). Care Ethics in The Age of Precarity (pp. 19-47). University of Minnesota Press. https://doi.org/10.5749/j.ctv2382dwh.5
Köhler, H.-D., & Calleja, J. P. (2013). Conflicto laboral y movimiento sindical en España. ¿Qué queda del “movimiento obrero”? Anuari del Conflicte Social 2013, 750-767. Observatorio del Conflicto Social.
Kuppers, P. (2014). Crip Time. Tikkun, 29(4). https://muse.jhu.edu/article/558118
Lakshmi Piepzna-Samarasinha, L. (2018). Care Work: Dreaming Disability Justice. Arsenal Pulp Press.
Lakshmi Piepzna-Samarasinha, L. (2022). The Future is Disabled: Prophecies, Love Notes and Mourning Songs. Arsenal Pulp Press
Lin, Y.-Y. (2020). Resilience Journal. Yo-Yo Lin. https://www.yoyolin.com/resiliencejournal
Lingsom, S. (2008) Invisible Impairments: Dilemmas of Concealment and Disclosure, Scandinavian Journal of Disability Research, 10(1), 2–16.
Lugo Sánchez, L. J. (2017). Participación y acción conectiva en novísimos movimientos sociales: el caso del #YoSoy132 y el 15M. Revista Internacional del Pensamiento Político, 12, 35-49.
Lugo Sánchez, L.J. (2016). Participación y acción conectiva en novísimos movimientos sociales. El caso del 15M y el #YoSoy132 (Masters Thesis). Ciencias de la Comunicación, Universidad Nacional Autónoma de México.
Mainemelis, C. (2001). When the Muse Takes It All: A Model for the Experience of Timelessness in Organisations. The Academy of Management Review, 26(4), 548–65.
McRuer, R. (2006). Crip Theory: Cultural Signs of Queerness and Disability. New York University Press.
McRuer, R. (2018). Crip Times: disability, globalization, and resistance. New York University Press.
Mingus, M. (2015). Medical Industrial Complex Visual. Leaving Evidence. https://leavingevidence.wordpress.com/2015/02/06/medical-industrial-complex-visual
Montesi, L. & Calestani, M. (Eds.) (2021). Managing Chronicity in Unequal States: Ethnographic perspectives on caring. UCL Press.
Motta-Ochoa, R. & Arruda, N. (2021). ‘My body is my laboratory’: Care experiments among persons who use drugs in Downtown Montreal. In L. Montesi & M. Calestani (Eds.) (2021). Managing Chronicity in Unequal States: Ethnographic perspectives on caring (pp. 176-196). UCL Press.
Mozo Mayoral, I., López Álvarez, L. & Ruiz García, D. (2024, February 5). Diez años de una victoria muy importante de la que casi nadie habla. El Salto. https://www.elsaltodiario.com/sanidad-publica/diez-anos-una-victoria-muy-importante-casi-nadie-habla
Papalia, C. (2023). Pain Pals. Leonardo. https://leonardo.info/criptech/eaat/pain-pals
Petersen, M. B., Slothuus, R., Stubager, R. & Togeby, L. (2011). Deservingness versus values in public opinion on welfare: The automaticity of the deservingness heuristic. European Journal of Political Research, 50(1), 24-52. https://doi.org/10.1111/j.1475-6765.2010.01923.x
Plumwood, V. (2003). Feminism and the Mastery of Nature. [1st edition 1993]. Routledge.
Price, M. (2014). Mad at School: Rhetorics of Mental Disability and Academic Life. The University of Michigan Press.
Price, M. (2015). The Bodymind Problem and the Possibilities of Pain. Hypatia, 30(1), 1-17. https://doi.org/10.1111/hypa.12127
Reig, R. (2015). Crisis del sistema, crisis del periodismo: contexto estructural y deseos de cambio. Gedisa.
Rheingold, H. (2002). Multitudes Inteligentes. La próxima revolución social. Gedisa.
Rochon, T. R. & Mazmanian, D. A. (1993). Social movements and the policy process. The Annals of the American Academy of Political and Social Science. 528(1), 75-87.
Rodrigo, D. & Iglesias, M. (2015). Trabajo en red y ciberactivismo. Los casos de Democracia Real Ya y Equo. Telos, 101.
Rose, R. F. (2022). Disability Justice vs. Supremacy Culture. Rebel Black. https://www.rebelblack.org/2022/09/12/disability-justice-vs-supremacy-culture/
Rose, R. F. (2023). Disability Dreaming Sessions. Gallery Gachet. https://gachet.org/past-events-and-exhibitions/disabilityjusticedreamingsessions
Ryan, F. (2019). Crippled: Austerity and the Demonization of Disabled People. Verso.
Samuels, E. (2017). Six Ways of Looking at Crip Time. Disability Studies Quarterly, 37(3). https://doi.org/10.18061/dsq.v37i3.5824
San José, C. (2013). La lucha de la sanidad en Madrid. Algunas claves del conflicto. Viento Sur. https://vientosur.info/algunas-claves-del-conflicto/
Sánchez, J. L. (2013). Las 10 mareas del cambio. Roca.
Schalk, S. (2018). Bodyminds Reimagined: (Dis)ability, Race, and Gender in Black Women’s Speculative Fiction. Duke University Press. https://doi.org/10.1215/9780822371830
Schweik, S. (2011). Lomax’s Matrix: Disability, Solidarity, and the Black Power of 504. Disability Studies Quarterly, 31(1). https://doi.org/10.18061/dsq.v31i1.1371
Siebers, T. (2008). Disability Theory. The University of Michigan Press. https://doi.org/10.3998/mpub.309723
Sins Invalid. (2019). Skin, Tooth, and Bone: The Basis of Movement is Our People. A Disability Justice Primer. 2nd edition. Sins Invalid
Smith, J. E. (2002). Time and Qualitative Time. In P. Sipiora & J. Baumlin (eds.), Rhetoric and Kairos: Essays in History, Theory, and Praxis (pp. 46-57). State University of New York Press.
Soldatic, K. (2011) Appointment Time: Disability and Neoliberal Workfare Temporalities. Critical Sociology, 39(3), 405-419.
Springlove (2024). Alchemizing Fatigue. Access Centered Movement. [Retrieved from https://accesscenteredmovement.com/alchemizing-fatigue/]
Stevens, S. E. (2018). Care Time. Disability Studies Quarterly, 38(4). https://doi.org/10.18061/dsq.v38i4.6090
Toret, J. (2013). Tecnopolítica: la potencia de las multitudes conectados. El sistema red 115M, un nuevo paradigma de la política distribuida. IN3. Working Paper Series.
Wendell, S. (1996). The Rejected Body: Feminist Philosophical Reflections on Disability. Routledge. https://doi.org/10.4324/9780203724149 | ||
آمار تعداد مشاهده مقاله: 42 تعداد دریافت فایل اصل مقاله: 10 |